Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
Submissions
A voice for SWAN families
Our submissions are one way we ensure that the voice of SWAN families is heard. We make submissions on issues across health, disability, and education in consultation with our community. We particularly focus on genomics and the NDIS.
SWAN submissions 2022
SWAN submissions 2021
SWAN – Current Scheme Implementation and Forecasting for the NDIS – Submission October 2021
SWAN – Proposed NDIS legislative improvements and the Participant Service Guarantee
- SWAN – NDIS Joint Standing Committee Inquiry into Independent Assessments
- SWAN – Supporting young children and families early, to reach their full potential
- SWAN – NDIS Planning Policy for Personalised Budgets and Plan Flexibility
- SWAN – Access and Eligibility Policy for Independent Assessments
SWAN submissions 2019
SWAN submissions 2018
SWAN submissions 2017
SWAN submissions 2016
GUARD collaborative submissions 2021 (SWAN is a GUARD member)
- GUARD Collaborative – Current Scheme Implementation and Forecasting for the NDIS
- GUARD Collaborative – Proposed NDIS legislative improvements and the Participant Service Guarantee
- GUARD – NDIS Joint Standing Committee Inquiry into Independent Assessments
- GUARD Collaborative – Supporting young children and families early, to reach their full potential
- GUARD Collaborative – NDIS Planning Policy for Personalised Budgets and Plan Flexibility
- GUARD Collaborative – NDIS Access and Eligibility Policy for Independent Assessments
SWAN submissions 2023
SWAN submissions 2020
SWAN submissions 2015
SWAN submissions 2014
SWAN Submissions 2023
SWAN Submissions 2022
SWAN submissions 2020
SWAN submissions 2017
SWAN submissions 2016
GUARD collaborative submissions 2021 (SWAN is a GUARD member)
- Statement regarding response to the New Frontiers report
- GUARD National Medicines Policy Review
- GUARD Newborn Screening – Position Statement
- GUARD – Inquiry into Approval for New Drugs and Novel Medical Technologies in Australia
- GUARD Collaborative – Consultation on the MSAC Revised Draft Guidelines
- GUARD Collaborative COVID-19 Statement
Contact Us / Media Enquiries
- PO Box 390 Fairfield VIC 3078
- 0404 280 441
- info@swanaus.org.au