Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
Our submissions are one way we ensure that the voice of SWAN families is heard. We make submissions on issues across health, disability, and education in consultation with our community. We particularly focus on genomics and the NDIS.
SWAN – Current Scheme Implementation and Forecasting for the NDIS – Submission October 2021
SWAN – Proposed NDIS legislative improvements and the Participant Service Guarantee