SWAN Australia was established late 2012 with the aim of assisting parents who had a child an undiagnosed or rare genetic condition. We wanted to provide support, information, and advocacy to SWAN families on their unknown journey.
SWAN UK was originally established as a charity in 1999 by a SWAN grandmother. It was adopted in 2011 by the Genetic Alliance UK which continues to this day to offer support to undiagnosed families.
SWAN USA was originally established as an e-support group in 2001 to provide support to families experiencing the uncertainty of an undiagnosed conditions. It transposed formally into a not-for-profit organisation in 2006.