SWAN committee of management
Welcome to the SWAN Committee. My name is Heather and I am the founder of SWAN Australia. My daughter is my inspiration which fuels my passionate to continue to support and advocate for SWAN families. I would like to see all our SWAN families receive a diagnosis for their undiagnosed children.
I am also a member of the Croxton School Council and member for the Melbourne Genomics Health Alliance Community Advisory Group.
Hello, my name is Tim and I am studying to be a social worker. I am also father to a beautiful daughter who has a rare disease.
I work as an accounting background and have an interest in undiagnosed genetic conditions.
I am a qualified genetic counselling as well as overseeing an all-abilities and inclusive gymnastic program coach.
Hi! My name is Dani and I am Mum to a 4 year old son who has recently been diagnosed.
As an paediatric occupational therapist I have always been passionate about the health and wellbeing of infants, children and adolescents.
Since having my own child with an undiagnosed genetic disorder and disability, my passion and drive to be an advocate for my son and others like him has only grown.
I hope to assist other SWAN families in connecting with one other, to navigate our often tricky health care system and to create greater community awareness of SWAN kids all around Australia.
I am a Bio Informatics student with an interest in genetics and genomics. I am also interested in genetic counselling and want to help our members at the grass roots level.