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Meet our SWAN team

Welcome to the SWAN Committee. My name is Heather and I am the founder of SWAN Australia. My daughter is my inspiration which fuels my passionate to continue to support and advocate for SWAN families.

I am a member of the Melbourne Genomics Health Alliance Community Advisory Group and the Australian Genomics “Genomics in the Community” Working Group. I am also a moderator for both the FOXP1 and Undiagnosed rareconnect.org communities

Hello, my name is Tim and I am father to a beautiful daughter with a rare genetic syndrome. I love my daytime role as a dad/carer and also work after hours as a social worker/crisis counsellor. I am especially passionate about SWAN’s mission to facilitate social connection and peer support for our families.

Hi Everyone, I’ve been trained as neuropsychologist and researcher. I am now full time mum to Charlie and his sister Chloe.

I have an accounting background and enjoy volunteering my time and contributing to SWAN via my skill set.

Hi I’m Cody and I am a science student.

I am an Inclusion Support worker in 4-year-old kindergarten programs and am studying a Master of Inclusion and Disability. I hope to support and help SWAN families through my experience in disability services.

I am a researcher at the at Murdoch Children’s Research Institute where my research is focused on understanding the cause of rare and undiagnosed genetic disorders. My team is developing developing new analysis approaches that aim to improve our ability to provide a genetic diagnosis for people affected by rare genetic disorders. .

I am a Victorian based genetic counsellor working primarily in the cancer and general genetics settings. I have been a member of the SWAN committee since 2016. I hope that my experiences working in genetics will assist me in supporting SWAN families by providing information and insight into genetics and genetic testing as well as ongoing support through their journey.

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