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Useful website links

This is a brief list of links that SWAN families have found useful over time. If the letter does not hyperlink, we have no website listings under that letter.

If you would like to add to the list, please email: [email protected] Please note that if you are searching the Internet for information, ask your doctor or genetic counsellor for suggestions about good Internet sites, so that you are not reading inaccurate and often alarming information.

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