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Genetic Undiagnosed and Rare Disease Patient Pathways Nurse

Our Telehealth Patient Pathways Nurse is a free and confidential information support service for SWAN families living in Australia. To secure an appointment, please complete the booking form below and our telehealth nurse will then contact you directly to arrange a time for a consultation. Or if you would prefer you can call the Patients Pathways Nurse direct 1300 755 050 to assist you with making an appointment.

The Patient Pathways nurse may be able to assist you with any questions and/or concerns you may have including:

  • Questions you may have about your child’s undiagnosed or genetic condition.
  • Emotional support.
  • Information on how to manage life with your SWAN child.
  • How to navigate supports, services and resources that may be able to assist your family with caring for your SWAN child.
  • Help on guiding you through the healthcare system to access all the relevant services.
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