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Olesiya Minder
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Tammy Leigh
Chris Brimble
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SWAN Portraits Exhibition 2022
SWAN Portraits Exhibitions – The Story Behind the Exhibition
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SWAN19 – Genetic and Genomics Conference
SWAN Disability Transition Conference
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Heidi May’s Story
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WES for Rare Disease
There is more to a diagnosis than a name
Barriers to care
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Ambiguous grief – part 2
Ambiguous grief – part 1
Advocating for your child’s rights at school
About SWAN
A day in the life of not knowing
FaceMatch — more info
Some children are not the same
Your other children
What is a gene test
About SWAN
SWAN – Supporting Siblings
SWAN – The Diagnostic Pathway
Genetic and Genomic Testing Explained
SWAN – About Us
SWAN – Supporting young children and families early, to reach their full potential
SWAN – NDIS Planning Policy for Personalised Budgets and Plan Flexibility
SWAN – Access and Eligibility Policy for Independent Assessments
GUARD Collaborative – Supporting young children and families early, to reach their full potential
GUARD Collaborative – NDIS Planning Policy for Personalised Budgets and Plan Flexibility
GUARD Collaborative – NDIS Access and Eligibility Policy for Independent Assessments
GUARD Collaborative – Consultation on the MSAC revised draft guidelines
GUARD Collaborative – Inquiry into approval processes for new drugs and novel medical technologies in Australia
GUARD Collaborative COVID-19 statement
Consultation on national model for clinical consent to genomic testing
NDIS Planning
The NDIS Act Review and NDIS Participant Service Guarantee discussion paper
NDIS Thin Markets Project
NDIS ICT Systems
NDIS Assistive Technology Systems
Supported School Transport and Transition to the National Disability Insurance Scheme
Draft disability action plan 2018-2020 DHHS consultation survey
Consultation draft of the National Health Genomics Policy Framework
NDIS Code of Conduct Discussion Paper
Response to consultation draft implementation plan for the National Health Genomics Policy Framework
Inquiry into the Provision of Services under the NDIS Early Childhood Early Intervention Approach
Response to Genomic Health Care for Victoria discussion paper
Carers Draft Service Concept
Current levels of access and attainment for students with disability in the school system
Inquiry into Childcare and Early Childhood Learning
SWAN Siblings
SWAN Information
SWAN Health Professionals
SWAN Genomic Testing
SWAN Diagnostic Pathways
The Need for Genomic Testing
Lily’s Story
Rare Disease Day Heroes
Assoc Prof Sue White
Shannae and Eddy
Will’s Dream
Bec, Ruby and Sophie
Belinda, Lauchlan and Maddy
Kris and Will
UCAD 2015 – UK
About SWAN UK
Without A Diagnosis – Kat Williams
Ellie’s Story – SWAN UK UCAD 2016
UCAD 2016 – Australia
UCAD 2014 – Australia
Find Your Rare Genetic Tribe
FaceMatch Launch
My Genome Sequence
Whole Genome Sequencing and You
Ambry Genetics: What is Exome Sequencing?
Ambry Genetics: The Clinical Applications of Exome Sequencing
DNA, genes and genome
The 100,000 Genomes Project
Meet the Expert Series: “Coping in the pandemic… what helps” – Recorded May 2020
Meet the Expert Series: A Parent’s Perspective of Genetic Epilepsy – Recorded April 2020
Meet the Expert Series: Becoming Chief – Recorded March 2020
Meet the Expert Series: FaceMatch – Recorded February 2020
Meet the Expert Series: Genomics and Technology – Recorded September 2019
Meet the Expert Series: Genetic Counselling – Recorded August 2019
NDIS – “Cutting Through The Guff”
SWAN Siblings Presentation
SWAN Families
Genetic Testing Explained
Supporting SWAN Families
Genetic Testing
About SWAN Australia
SWAN Families
SWAN2019 Conference Linda Fothergill (MC) Recorded: 19 October 2019
SWAN2019 Conference Kris Pierce Recorded: 19 October 2019
SWAN2019 Conference Dr Cas Simons Recorded: 19 October 2019
SWAN2019 Conference Renee Swannack (SWAN Parent) Recorded: 19 October 2019
SWAN2019 Conference Rhiana Spinoso Recorded: 19 October 2019
SWAN2019 Conference Jane Tiller Recorded: 19 October 2019
SWAN2019 Conference Associate Professor Sue White Recorded: 19 October 2019
SWAN2019 Conference Professor David Amor Recorded: 19 October 2019
Events
Undiagnosed Children’s Awareness Day and SWAN’s 10th Birthday
SWAN bereavement group virtual catch up
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
Meet the Expert Series: Libby Roden, Grief and Bereavement
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
Meet the Expert Series: Helen Johnson
SWAN informal virtual chat session with members
SWAN informal virtual chat with Newcastle members
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
Meet the Expert Series: Kate Strohm at Siblings Australia
Meet the Expert Series: Psychologist Evelyn Bugel
Defend our NDIS – National Day of Action – SWAN virtual event
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN Siblings High School Zoom
SWAN Siblings Primary School Zoom
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
Meet the Expert Series: Carer Gateway – Wellways Session
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
Rare Disease Day 2022
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
Meet the Expert Series: Queen Elizabeth Centre – Exploring Sleep and Behaviour for children 0 – 4 years
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
SWAN AGM
National Carers Week – SWAN Virtual Event
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN informal virtual chat session with members
SWAN informal virtual chat session with members who have a SWAN child over 10 years old
SWAN Disability Transition Conference – Pre-Conference Dinner – Newcastle
SWAN Disability Transition Conference – Pre-Conference Dinner – Canberra
SWAN Disability Transition Conference – Pre-Conference Dinner – Gold Coast
SWAN Disability Transition Conference – Pre-Conference Dinner – Launceston
SWAN Disability Transition Conference – Pre-Conference Dinner – Hobart
SWAN Disability Transition Conference – Pre-Conference Dinner – Adelaide
SWAN Disability Transition Conference – Pre-Conference Dinner – Perth
SWAN Disability Transition Conference – Pre-Conference Dinner – Brisbane
SWAN Disability Transition Conference – Pre-Conference Dinner – Sydney
SWAN Disability Transition Conference – Pre-Conference Dinner – Melbourne
SWAN Disability Transition Conference features a number of speakers with lived experience of caring for a child with a disability.
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