How to be your child's best advocate

Advocacy is speaking up to support a cause, person, idea, plan, place or thing. It can be done in a variety of ways. As a SWAN parent/carer, the person might be you, your child or your family. The greater cause may be improving the lives of families who have children with rare or undiagnosed genetic conditions.

There are many reasons a SWAN parent/carer might advocate for their child and there is no right or wrong way to advocate. To learn more, click on the image (left) to access our tool kit.