Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
Education systems vary from state to state. Every school is different, just like every child is. We encourage you to do your own research when selecting schools. You want to choose the school that you think will best suit your child’s and family’s needs. Not every school will necessarily suit every student at every year level, so be mindful of this. There is nothing wrong with changing school if the current school is no longer meeting the needs of your child or is no longer the best fit for them or your family. It’s helpful to be flexible, adaptable and tuned in to what is working well or not so well.
SWAN recommends you tour a few schools and take a support person with you. Talking with parents who have children attending the schools you are interested in is a great way to get an understanding of how the school could best meet your child’s needs.
There are different models of education SWAN families can access depending on where they live. These include: