Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
Healthcare professionals are part of SWAN families’ support teams. Sometimes, it is difficult to know what to say to a family or who to connect them with for support. Please encourage families caring for children with undiagnosed or rare genetic conditions to join SWAN activities for support. You can never underestimate the impact of peer support.
For more information and guidance on how you can support our SWAN families, please download our Healthcare Professionals information sheet.