Useful Links

Website resources

This is a brief list of websites that SWAN families have found useful. If the letter does not hyperlink, we have no website listings under that letter.

If you would like to add to the list, please email us at We recommend asking your doctor or genetic counsellor about websites with quality information. It can help you avoid inaccurate or alarming information. We also encourage you to do your own research.

Useful Links (PDF)

This document is a summary of weblinks SWAN thinks will be of most use to our families.

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