Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
This is a brief list of websites that SWAN families have found useful. If the letter does not hyperlink, we have no website listings under that letter.
If you would like to add to the list, please email us at [email protected]. We recommend asking your doctor or genetic counsellor about websites with quality information. It can help you avoid inaccurate or alarming information. We also encourage you to do your own research.