Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
Raising a child with unexplained physical, behavioural or cognitive challenges can be difficult. Parents can feel isolated, angry, confused, helpless, distressed. SWAN Australia is here to help.
Below you will find a complete list of SWAN’s support and information services.
Receive help when you need it with our dedicated phone service (0404 280 441), available Monday to Friday 9.00am – 5.00pm. If you can’t get through, please leave a message and we will return your call as soon as we can.
Our dedicated Telehealth Patient Pathways Nurse provides free and confidential information support to SWAN families in Australia. To make an appointment, please complete the booking form or call 1300 755 050. The patient pathways nurse can help with questions or concerns you may have about your child. They can assist by:
Meet with other SWAN families at in-person gatherings and events held across Australia. Connect with other parents over a meal, a low-key morning catch-up or an afternoon tea in the park. Our informal gatherings are many and varied. We can even connect you with other SWAN families in your area so that you can arrange your own local catch-up. Upcoming catch-ups are listed on our website. Sign up to our newsletter and we’ll let you know about events near you.
Join our virtual community for regular online sessions where SWAN members can share information and support one another through the different stages of their parenting journey. SWAN hosts two virtual catch-ups:
Meet other fathers of SWAN children at our Dads’ Group. Launched in Victoria, our Dads’ Group provides support for fathers. We plan to expand the program to other states soon. We recognise that dads’ experiences of parenting SWAN children may be different from their partners’. Many dads don’t have the opportunity to attend therapy sessions with their child and miss out on connecting with other parents. Our Dads’ Group brings SWAN fathers together for fun activities so that they can feel connected and supported. This may include activities such as barefoot bowls, rock climbing or a day at the cricket or footy. Our SWAN dads are welcome to suggest activities they would like SWAN to host. We’ll let you know about the next Dad’s Group in our regular newsletter and we’ll add it to our events calendar.
Our siblings’ program addresses some of the needs of SWAN siblings. It provides a safe place where they can socialise and be supported emotionally. The program offers a range of different activities and provides a structured environment where siblings can discuss their emotions, learn about resilience and also enjoy social outings with other SWAN siblings such as ten-pin bowling. We share upcoming siblings’ events in our newsletter and on our events calendar. You may also find our siblings resources helpful.
Join our virtual Meet the Expert Series and hear our guest speakers talk about important topics such as carer wellbeing. Each session features a different guest speaker and topic of interest. This may include issues like Wills and estate planning, and variant curation. We invite SWAN members to suggest topics and speakers. Virtual Meet the Experts sessions are listed on our website and shared in our newsletter.
If your SWAN child is in hospital, please let us know so that we can send a small gift for your child. We will also include a parent meal voucher for you too. Simply email [email protected] so that we can send you a care pack. It’s our pleasure to send you this pack. We hope it helps ease your child’s time in hospital and serves as a reminder that you are not alone.
Join our SWAN community on one of our social channels below.