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Do you want to work as a Volunteer at Syndromes Without A Name Australia? If you would like to assist in any capacity be it big or small please contact SWAN Australia: [email protected]

My name is Anja, and I’ve been volunteering for SWAN for around six months now. Last year I completed the Bachelor of Science at The University of Melbourne, and completing the course allowed me to discover my love for genetics. However, the course also caused me to realise that I prefer working with people in real-life situations, not just in a laboratory, so I’m currently working towards applying for the Masters of Genetic Counselling next year. I decided to take this year off to gain some experience in the area, which is when I came across SWAN. When I first met Heather and she explained SWAN to me, I was so excited about the prospect of volunteering for SWAN, because supporting families with children that have rare genetic disorders is something that I knew I’d be passionate about, but would also help me with the volunteering component of my Masters application.

I started my volunteering with SWAN by helping out at the Christmas party last year, and while the situation has been a bit different this year, I’ve managed to keep helping out with SWAN from home. Earlier in the year I helped with distributing flyers and posters for the Undiagnosed Children’s Awareness Day celebrations (before the event was unfortunately postponed), and my work from home has included tasks such as compiling a calendar of grants that SWAN can apply for, looking up website design ideas for the SWAN website, and compiling a list of donors that SWAN could contact. Heather and I are also currently working towards me taking over the SWAN Instagram account, so if you have Instagram make sure you’re following the SWAN account so you can check out what we’re posting!

My involvement with SWAN so far has been nothing but positive, and I’ve found all of the work really interesting, as it’s quite different to anything I’ve done before. It’s really nice to know that the work I’m doing is going to a great cause, and one that I’m personally really interested in and passionate about, while also contributing to my future career. I’m hoping to work with SWAN for as long as I can!

Do you want to volunteer for an event. Every year in March, SWAN Australia celebrates “Undiagnosed Children’s Awareness Day”. The day brings the wider community together in raising awareness of the large number of children living without a diagnosis for their genetic condition. We welcome new and regular volunteers to this event to ensure the day is a success. If you would like to volunteer please email: [email protected] or telephone: 0404 280 441.

Do you have some spare time and would like to give back to the community. SWAN Australia would welcome you to volunteer for their committee of management. If you have skills in the area of IT, law, finance, event management or just want to lend a hand, we would appreciate your help. Please email [email protected] or telephone: 0404 280 441.

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