Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
Professor Sue White
Associate Professor Tracy Dudding-Byth is a full-time consultant clinical geneticist and Director of the NSW Genetics of Learning Disability (GOLD) service. Her clinical and research interests include Neurofibromatosis type 1 and the genetics of intellectual disability and rare diseases.
Joshua Patrick is our SWAN siblings ambassador. He has a sister with an undiagnosed genetic condition and their family is based in WA. Josh is also a TEDxYouth speaker, Carers Australia young carer media ambassador, army cadet corporal, student leader, disability advocate and a young carer.