Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.
SWAN Australia’s Board consists of a Chair, Deputy Chair, Treasurer, Secretary and an Ordinary Member, and CEO, Heather Renton, who oversees national activities. Our board members’ professional experience spans both the health and disability sectors (with a collective experience of over 65 years), leadership, finance and law. Our directors contribute their valuable expertise on a pro bono basis. You can contact any of our board members by emailing email@example.com.
The Board meets monthly and approves, monitors and reviews the organisation’s strategy, finance and budget, sub-contracting arrangements and risk management plan. You can view or download a copy of our Strategic Plan.
SWAN gratefully acknowledges our dedicated volunteers for their important contributions.
SWAN Australia is an incorporated association and Australian registered body and is a small-sized charity.
Heather is the Chief Executive Officer and founder of SWAN Australia. Heather draws on her lived experience managing her daughter’s undiagnosed condition for over nine years. She established SWAN Australia to ensure other families did not face their child’s undiagnosed or rare condition unsupported. Heather is a passionate health and disability advocate and is a member of various committees and advisory groups, including:
Ant joined SWAN Australia in February 2022 as the Administration Officer. In her role, Ant provides admin support for SWAN families via phone, email and social media. She assists the CEO with advocacy work, submissions and events. Ant is a genetic counselling student at UTS with a background in disability support care and a graduate certificate in counselling. You can contact Ant at firstname.lastname@example.org or 0466 122 290.
Janet Collins – Chair
Janet joins SWAN after spending 25 years working in the strategic planning, fundraising, events management, service delivery and evaluation domains. Her experience spans a wide range of roles, having led teams and projects in the disability and community services sectors. Janet is a member of the Australian Association of Social Workers, the Australian Institute of Company Directors and Principal Consultant at PA Strategy Consultants. She brings to the boardroom a strong focus on stakeholder engagement and strategic partnerships, and an understanding of the hurdles facing SWAN families from her personal journey as the primary carer of her son with an undiagnosed condition.
Tania Prior-Smith has spent her career in Senior Management in the pharmaceutical and healthcare industry, and most recently in consultancy specialising in sales, strategy and marketing. She is also currently completing a post grad in counselling. Tania has held voluntary positions with Lung Foundation Australia and ChILD Foundation working on advocacy and support for families. Her experience is also combined with being the mum to a SWAN child, which enables her to have an understanding of the goals and values we set as a foundation and is passionate to make a difference.
Emma Amalfi – Treasurer
Emma has worked in the finance sector over the last ten years, both in Australia and overseas. She brings with her a wealth of knowledge of both the commercial and charity sectors. Emma’s experience includes financial statements, taxation, forecasting, budgets and business growth.
Deborah is a current Masters of Genetic Counselling student, who recently commenced a new role in genetic services within the public health sector. She has a PhD in medical research and has managed submissions and reporting for numerous national and international grants. With over 15 years of experience in project management, ethics and compliance, including 7 years in the not-for-profit sector, Deborah brings a diverse skill-set to the SWAN board.
Rod’s education is in the fields of Economics and Government. He also has experience in business planning, resource management, and financial modelling and recruitment. Rod is currently Senior Business Development with Carers Queensland assisting to deliver the Your Caring Way Programme. He is Treasurer for the Fresh Futures Inc. a programme that assists Children with Disabilities transition to the workforce on leaving school. With 9 grandchildren and an obsession to be a decent golfer, Rod’s calendar is pretty full.