Six months ago, Crystal Lina decided to use skills and pay it forward and to create a butterfly effect of kindness.
Earlier in the year, she had met a beautiful lady, Kat Barlow who’s son Noah had a very rare version of mitochondrial disease. In fact, it is so rare he was the only known person in the world with it.
Having been inspired by Noah’s story, Kat, Heather and Crystal founded the SWAN Portraits.
SWAN stands for Syndromes Without A Name.
The idea was to gather a group of artists and create portraits of children with rare genetic disorders—some children are now angels and others who will go forth to live their lives.
The most inspirational part is now Crystal receiving portraits from around the world that will be gifted to these courageous children and their families.
This is my Noah. Noah has a rare type of mitochondrial disease.
He’s nine and loves to laugh, as you can see.