Corona Virus
The Genetic Undiagnosed And Rare Disease (GUARD) collaborative recently conducted a COVID-19 Survey. Did you know that 87% of respondents have been impacted by COVID-19 and 59% believe they are at increased risk of COVID-19? Click our COVID-19 survey results to read our other findings.
Who we are
Syndromes Without A Name (SWAN) Australia is a not for profit charity and the peak organisation supporting families who care for a child with an undiagnosed or rare genetic condition.
Discover more about SWAN Australia and how we were established. Meet our board and understand our mission and vision for the future.
Our work
Learn more about what we do and our purpose and goals. View our SWAN Strategic Plan and submissions to better understand how we advocate for change. And don’t forget to subscribe to our newsletter.
You can learn more about our recent work in our 2018-2019 annual report.