Syndromes Without A Name (SWAN) Australia provides information and support to families who have a child with an undiagnosed or rare genetic condition.
Learn more about what we do and our purpose and goals. Have our read of our strategic plan and read our submissions to get an understanding of how we advocate for change. And don’t forget to subscribe to our quarterly newsletters.
You can learn more about our recent work in our 2016-2017 annual report.
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Life is difficult enough when you have a child with a disability or medical condition, but when nobody can give you answers it is that much harder.